I am 29 and am now 6 months into my chemo regime for Desmoplastic Small Round Cell Tumours, I have 3 months of treatment (at least) left. I do 3 days straight of chemo every 3rd week. I am about to swap to a stem cell treatment (big doses of chemo, then boost me with my own stem cells and blood transfusions). What I have learned is this.
1. do whatever makes you happy, whether that's spending some cash, riding a bike. Feeling normal is the one thing I truly craved through my treatment and have only just allowed myself to achieve.
2. Your body will tell you what you can and can't do. No if's, no but's. If your well enough to ride (I have been with my mates, however I only last about 15k of xc in Glenrock with frequent stops) then by all means do it. Just be careful of mental fatigue and a possible lack of strength/co-ordination. I find that my riding is not as fluid as it once was.
3. Take plenty of water, I now sweat a lot despite the fact i only have hair on my eyebrows and very thin leg hair.
4. Only ride with mates. Avoid the solo trips. It's simply a safety thing as my body feels a little confused at times.
5. Racing. I planned on doing a lap or 2 in the Awaba Vestil Virgin 10 hour, I am still considering this.
6. I have been water skiing a few times and find that in strength sports I can go fine before a sudden and instant loss of strength. Doing martial arts when i can as well at the moment and just have to pace myself.
7. Chemo leaves me stupid and as previously mentioned in another post, like i have the worlds biggest hangover. Have plenty of frozen pizza, pies etc on hand. When you feel like eating, eat. But it's so much easier if the food you want to eat is available.
8. Energy. I just don't seem to store any. When exercising I need to take something to boost me.
That's about it for now. I also use natural supplements alongside my chemo.
If you want any info about anything I've said, or anything I haven't said (and I mean anything, I'm a teacher so I don't mind passing on info) please PM me.
All the best.
Koen
Edit: I forgot to mention to not read too much info, especially on the net. You only need to know what you have. It's very hard to stay positive if you have too much negative information